I had never heard of Dravet Syndrome before a running buddy mentioned to me that she had a family member with it and that there was a virtual race/fundraiser happening to help raise awareness and raise funds for research for this rare form of epilepsy.
Would I like to do it?
Sure! Why not!?
Sure! Why not!?
Well, I haven't raised as much money as I had hoped to do on my own personal campaign for the fundraiser, but as of Sept. 5th there was a total of $10,000 raised for this small cause and small race.
Well, as with any virtual, the rules are relaxed and you can run the half marathon all at once or run 13.1 miles broken up over several runs within a certain time period. My goal is not to get a PR with some outstanding time to cover the distance but to help raise awareness.
So today, I printed out my bib and dedicated a short (but long! It's hot out...) run to my little friend who I haven't met in the hopes to brighten her day and in hopes to raise money for research, awareness and hope for medication to manage this awful form of epilepsy.
There! Now it is complete! |
4 miles done this afternoon and 10 more on my schedule for tomorrow.
The shirt before I added a plethora of puff paint, the sorta finished design and my virtual race bib. |
Do you do virtual races? What draws you to them? Causes? Cool medals? Just a need for a new challenge?
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